Yasmin El Samra Foundation honored at MENA Congress for Rare Diseases

In a significant milestone for DEBRA Egypt, the Yasmin El Samra Foundation participated in the MENA Congress for Rare Diseases, held in Abu Dhabi from April 7th to 20th. The Foundation’s prominent role, including a keynote presentation and an award-winning poster, highlighting their unwavering dedication to improving the lives of individuals living with Epidermolysis Bullosa (EB) across Egypt and the Arab world.

The MENA Congress for Rare Diseases brought together international experts, researchers, and policymakers to share insights and advance strategies in rare disease diagnosis, care, and advocacy. As one of the region’s largest platforms for rare disease engagement, the event highlighted innovative solutions and collaborative efforts across borders.

Yasmin El Samra Foundation’s contributions were met with enthusiastic recognition. Among 33 exceptional submissions, its research and advocacy poster was selected as one of the top five winners, a testament to the foundation’s impactful work and commitment to the EB community.

“Being invited as a Chairperson and sharing our journey on such a prominent stage has filled me with profound gratitude,” said Hanaa Elsadat, Founder of Yasmin El Samra Foundation – DEBRA Egypt. “It’s incredibly humbling to see how our collective efforts are making a tangible difference for those who need it most.”

This recognition reflects not only individual leadership but a team-wide mission rooted in compassion and advocacy. With over 400 EB patients supported through comprehensive medical care, awareness initiatives, and community outreach, the foundation continues to serve as a crucial lifeline for those living with this rare and debilitating genetic condition.

As the global spotlight intensifies on rare diseases, the Yasmin El Samra Foundation reaffirms its commitment to expanding care, increasing awareness, and advocating for patients with EB and other underserved conditions. Their recognition at the MENA Congress is not only a proud moment, but also a catalyst for continued action and international collaboration.

This achievement reflects DEBRA Egypt’s enduring resolve to advance medical understanding, empower affected families, and strengthen the global EB community.