NEWS

Jul 15

Take part in new BUR-EB project to improve EB care in Europe

BUR-EB's new study aims to assess patients’ quality of life and the financial burden of EB on their families.

Feb 28

Debra Brasil 2023 Congress

The 4th Debra Brasil Congress held in Belo Horizonte marked a significant milestone in the awareness and research of Epidermolysis Bullosa.

Dec 21, 2023

Last call to get patients involved in the GRIDD study

The online survey takes 10-20 minutes to complete and is open only until December 31, 2023.

Dec 20, 2023

DEBRA UK's grant call for 2024

UK and international applications are invited from 1st February – 31st March 2024 for DEBRA UK project grant and small grant award...

Aug 22, 2023

Building smiles and empowering Butterfly Children- research and webinar on oral health and QoL

DEBRA Indonesia hosted a free webinar to increase awareness and knowledge of oral and dental health for EB patients

Aug 22, 2023

DEBRA Spain's work in funding research, international collaboration, and EB healthcare

DEBRA Spain are delighted to announce they will be dedicating €100,000 to a research project to develop a topical gel to treat RDEB wounds.

Aug 14, 2023

DEBRA UK announces its first approved drug repurposing clinical trial

This clinical trial will see an existing licensed treatment for psoriasis clinically tested on children and adults with severe EB simplex

Jul 14, 2023

LifeArc and DEBRA Austria launch £2.5m funding call for repurposing therapies for EB

This Special call will seek innovative proposals to develop therapeutics for severe unmet needs that can be brought rapidly to EB patients.

May 3, 2023

DEBRA Chile holds 2nd Research Day for EB patients and families

DEBRA Chile holds 2nd Research Day for EB patients and families.

May 1, 2023

New clinical trials online tool goes live

EB Research Network has created a new online tool to make tracking of clinical trials easier

Mar 10, 2023

DEBRA Ireland launches an EB Expert Panel to help shape its support and research priorities

An EB Expert Panel was launched by DEBRA Ireland to help shape their support and research priorities.

Feb 24, 2023

DEBRA UK commissions EB patient insight study

DEBRA UK has commissioned a specialist medical research agency to conduct a detailed EB patient insight study on their behalf.

Feb 21, 2023

Congratulations to Amryt Pharma - recipients of a EURORDIS Black Pearl Award!

We are delighted to share that Amryt Pharma received the EURORDIS company award for patient engagement at the Black Pearl Awards

Jan 6, 2023

Remembering Prof Jouni Uitto

It is with a heavy heart that we share the news that a great legend in dermatology, Dr Jouni Uitto, passed away recently.

Oct 19, 2022

Epidemiology, pathological, and genetic characteristics of EB in New Zealand

Grant round: May 2018 Grant type: Project grant Grant recipient: DEBRA New Zealand Grant amount awarded: € 2,500.00 This grant supported...

Oct 19, 2022

International EB research: selection of high-quality research proposals 2022 has started

The 2022 All Priorities Call as well as the Ad-hoc Special Call for research proposals are now closed. We would like to thank the EB...

May 7, 2021

Take part in an international research study on burden and resources in EB - online survey

Take the survey in English: https://survey.sfu.ac.at/EB2021/?q=E_Qnr Take the online survey in German: https://survey.sfu.ac.at/EB2021/?q...

NEWS

DEBRA International