NEWS

DEBRA UK commissions EB patient insight study

DEBRA UK has commissioned a specialist medical research agency to conduct a detailed EB patient insight study on their behalf.

Congratulations to Amryt Pharma - recipients of a EURORDIS Black Pearl Award!

We are delighted to share that Amryt Pharma received the EURORDIS company award for patient engagement at the Black Pearl Awards

Remembering Prof Jouni Uitto

It is with a heavy heart that we share the news that a great legend in dermatology, Dr Jouni Uitto, passed away recently.

Epidemiology, pathological, and genetic characteristics of EB in New Zealand

Grant round: May 2018 Grant type: Project grant Grant recipient: DEBRA New Zealand Grant amount awarded: € 2,500.00 This grant supported...

International EB research: selection of high-quality research proposals 2022 has started

The 2022 All Priorities Call as well as the Ad-hoc Special Call for research proposals are now closed. We would like to thank the EB...

Take part in an international research study on burden and resources in EB - online survey

Take the survey in English: https://survey.sfu.ac.at/EB2021/?q=E_Qnr Take the online survey in German: https://survey.sfu.ac.at/EB2021/?q...