NEWS

Building smiles and empowering Butterfly Children- research and webinar on oral health and QoL

DEBRA Indonesia hosted a free webinar to increase awareness and knowledge of oral and dental health for EB patients

DEBRA Spain's work in funding research, international collaboration, and EB healthcare

DEBRA Spain are delighted to announce they will be dedicating €100,000 to a research project to develop a topical gel to treat RDEB wounds.

DEBRA UK announces its first approved drug repurposing clinical trial

This clinical trial will see an existing licensed treatment for psoriasis clinically tested on children and adults with severe EB simplex

LifeArc and DEBRA Austria launch £2.5m funding call for repurposing therapies for EB

This Special call will seek innovative proposals to develop therapeutics for severe unmet needs that can be brought rapidly to EB patients.

DEBRA Chile holds 2nd Research Day for EB patients and families

DEBRA Chile holds 2nd Research Day for EB patients and families.

New clinical trials online tool goes live

EB Research Network has created a new online tool to make tracking of clinical trials easier

DEBRA Ireland launches an EB Expert Panel to help shape its support and research priorities

An EB Expert Panel was launched by DEBRA Ireland to help shape their support and research priorities.

DEBRA UK commissions EB patient insight study

DEBRA UK has commissioned a specialist medical research agency to conduct a detailed EB patient insight study on their behalf.

Congratulations to Amryt Pharma - recipients of a EURORDIS Black Pearl Award!

We are delighted to share that Amryt Pharma received the EURORDIS company award for patient engagement at the Black Pearl Awards

Remembering Prof Jouni Uitto

It is with a heavy heart that we share the news that a great legend in dermatology, Dr Jouni Uitto, passed away recently.

Epidemiology, pathological, and genetic characteristics of EB in New Zealand

Grant round: May 2018 Grant type: Project grant Grant recipient: DEBRA New Zealand Grant amount awarded: € 2,500.00 This grant supported...

International EB research: selection of high-quality research proposals 2022 has started

The 2022 All Priorities Call as well as the Ad-hoc Special Call for research proposals are now closed. We would like to thank the EB...

Take part in an international research study on burden and resources in EB - online survey

Take the survey in English: https://survey.sfu.ac.at/EB2021/?q=E_Qnr Take the online survey in German: https://survey.sfu.ac.at/EB2021/?q...