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NEWS


May 3, 2023
DEBRA Chile holds 2nd Research Day for EB patients and families
DEBRA Chile holds 2nd Research Day for EB patients and families.


Mar 23, 2023
DEBRA Croatia celebrates Rare Disease Day
DEBRA Croatia celebrated Rare Disease Day with a radio & television feature, Zoom lectures, & took part in an event by Rare Disease Bahrain.


Mar 14, 2023
DEBRA Colombia attends the 33rd National Congress of Dermatology
DEBRA Colombia was invited to attend the trade show with a stand to continue raising awareness of EB and care routes in Colombia.


Mar 13, 2023
Yasmin El Samra Foundation-DEBRA Egypt 'draws' interest in their annual competition
Every year, the Yasmin El Samra Foundation-DEBRA Egypt in cooperation with El Sawi Wheel Center in Cairo has held a drawing competition.


Mar 10, 2023
DEBRA Ireland launches an EB Expert Panel to help shape its support and research priorities
An EB Expert Panel was launched by DEBRA Ireland to help shape their support and research priorities.


Mar 8, 2023
Celebration of the 15th World Day of Rare Diseases in Colombia
On 26th February, the 15th World Day of Rare Diseases was commemorated in the city of Bogotá, Colombia.


Mar 7, 2023
DEBRAs International and Egypt attend the MENA Organisation for Rare Diseases 2023 meeting in Dubai
DEBRAs International and Egypt attend the MENA Organisation for Rare Diseases 2023 meeting in Dubai


Mar 1, 2023
First health workshop "Salud sin Fronteras" ("Health without Borders") held in Mexico
The free workshop was held over two days and aimed at healthcare professionals, the EB Community, patients, and families.


Feb 28, 2023
Nada Ashraf from Egypt shares her story this Rare Disease Day
Nada Ashraf from Egypt shares her story this Rare Disease Day


Feb 24, 2023
DEBRA UK commissions EB patient insight study
DEBRA UK has commissioned a specialist medical research agency to conduct a detailed EB patient insight study on their behalf.


Feb 10, 2023
Maria Korosta's letter to us all
Maria Korosta, a paramedic living in Korost, a village in Rivne Pblast, Ukraine with her 2 boys Maksym (13) and Mykola (8)


Feb 8, 2023
New shipment of humanitarian aid arrives in Ukraine
On 8th February 2023, DEBRA Ukraine received 200 kg worth of humanitarian aid for 60 EB patients living in the country.


Jan 30, 2023
DEBRA Mexico's 1st EB Health Workshop
DEBRA Mexico's 1st EB Health Workshop. This workshop reflects the commitment of the global EB community to work together to promote health,


Jan 27, 2023
DEBRA Egypt celebrates EB Awareness Week 2022 on the Nile with EB patients and their families
DEBRA Egypt celebrates EB Awareness Week on the Nile with EB patients and their families.

Jan 25, 2023
Ukraine - a mother's note of hardship and hope
Ukraine - a mother's note of hardship and hope

Jan 23, 2023
DEBRA Germany introduces a new video on EB wound care
DEBRA Germany introduces a new video on EB wound care.


Jan 20, 2023
DEBRA UK raises a phenomenal £140,000
DEBRA UK raises a phenomenal £140,000 at its annual Fight Night event!


Jan 17, 2023
EB Awareness Week 2022 in Croatia
EB Awareness Week 2022 in Croatia was full of various activities.


Jan 10, 2023
DEBRA Indonesia's theme for EB Awareness Week 2022
DEBRA Indonesia celebrates EB Awareness Week 2022 : get to know EB, Butterfly Children, and the EB Community in Indonesia


Dec 21, 2022
We welcome DEBRA South Africa as one of our newest member groups
DEBRA International is delighted to welcome DEBRA South Africa as one of its newest member groups. DEBRA South Africa started in 2020...
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