NEWS

The free workshop was held over two days and aimed at healthcare professionals, the EB Community, patients, and families.

Nada Ashraf from Egypt shares her story this Rare Disease Day

DEBRA UK has commissioned a specialist medical research agency to conduct a detailed EB patient insight study on their behalf.

Maria Korosta, a paramedic living in Korost, a village in Rivne Pblast, Ukraine with her 2 boys Maksym (13) and Mykola (8)

On 8th February 2023, DEBRA Ukraine received 200 kg worth of humanitarian aid for 60 EB patients living in the country.

DEBRA Mexico's 1st EB Health Workshop. This workshop reflects the commitment of the global EB community to work together to promote health,

DEBRA Egypt celebrates EB Awareness Week on the Nile with EB patients and their families.

Ukraine - a mother's note of hardship and hope

DEBRA Germany introduces a new video on EB wound care.

DEBRA UK raises a phenomenal £140,000 at its annual Fight Night event!

EB Awareness Week 2022 in Croatia was full of various activities.

DEBRA Indonesia celebrates EB Awareness Week 2022 : get to know EB, Butterfly Children, and the EB Community in Indonesia

DEBRA International is delighted to welcome DEBRA South Africa as one of its newest member groups. DEBRA South Africa started in 2020...

During EB Awareness Week 2022, DEBRA International followed the endeavours of Dr Niraj Parajuli, a dermatologist from the National...

Grant round: May 2018 Grant type: Project grant Grant recipient: DEBRA New Zealand Grant amount awarded: € 2,500.00 This grant supported...

July and August were busy months for DEBRA Colombia as they took part in several fundraising, and EB awareness raising and educational...

In May 2022, we had the great fortune of bringing together nine Spanish-speaking countries together for the 1st Ibero-American Meeting of...

El pasado mes de mayo tuvimos la gran fortuna de reunir a 9 países de habla hispana a través de un encuentro online. Se sumaron...

Sesión virtual para pacientes y familias dedicada al proyecto sobre EB de Rare Commons

Take the survey in English: https://survey.sfu.ac.at/EB2021/?q=E_Qnr Take the online survey in German: https://survey.sfu.ac.at/EB2021/?q...