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NEWS


Your members' chance to participate in “The story of my skin” Art Contest
The Art Contest called “The story of my skin” started on 28th February during International Rare Disease Day and will finish on 30th May.
Feb 28, 2023


DEBRA UK commissions EB patient insight study
DEBRA UK has commissioned a specialist medical research agency to conduct a detailed EB patient insight study on their behalf.
Feb 24, 2023


EURORDIS Photo Awards 2023
'Smile to life, whatever the obstacles'
Feb 22, 2023


Congratulations to Amryt Pharma - recipients of a EURORDIS Black Pearl Award!
We are delighted to share that Amryt Pharma received the EURORDIS company award for patient engagement at the Black Pearl Awards
Feb 21, 2023


Maria Korosta's letter to us all
Maria Korosta, a paramedic living in Korost, a village in Rivne Pblast, Ukraine with her 2 boys Maksym (13) and Mykola (8)
Feb 10, 2023


New shipment of humanitarian aid arrives in Ukraine
On 8th February 2023, DEBRA Ukraine received 200 kg worth of humanitarian aid for 60 EB patients living in the country.
Feb 8, 2023


DEBRA Egypt celebrates EB Awareness Week 2022 on the Nile with EB patients and their families
DEBRA Egypt celebrates EB Awareness Week on the Nile with EB patients and their families.
Jan 27, 2023


DEBRA UK raises a phenomenal £140,000
DEBRA UK raises a phenomenal £140,000 at its annual Fight Night event!
Jan 20, 2023


EB Awareness Week 2022 in Croatia
EB Awareness Week 2022 in Croatia was full of various activities.
Jan 17, 2023


DEBRA Indonesia's theme for EB Awareness Week 2022
DEBRA Indonesia celebrates EB Awareness Week 2022 : get to know EB, Butterfly Children, and the EB Community in Indonesia
Jan 10, 2023


Taking DEBRA to new heights
During EB Awareness Week 2022, DEBRA International followed the endeavours of Dr Niraj Parajuli, a dermatologist from the National...
Dec 21, 2022


DEBRA Bosnia and Herzegovina launches picture book, Butterfly Boy
In 2019, DEBRA International was delighted to be able to support its member group, DEBRA BiH with a grant for their project to create and...
Feb 1, 2021


DEBRA International supports DEBRA Pakistan's first ever EB Awareness Week events
DEBRA International, through its EB Without Borders programme, was delighted to support the DEBRA Pakistan team in holding their first EB...
Feb 1, 2021
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