DEBRA Germany hosts EB families weekend
DEBRA Germany had a wonderful weekend with a group of EB families in Schmallenberg/ Sauerland.
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DEBRA International
- May 17
- 1 min
EB Clinet Online Seminar: Nutritional Needs & Anemia in Adults with EB
The next EB Clinet Online Seminar is dedicated to the topic of 'Nutritional Needs and Anemia in Adults with EB'
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DEBRA International
- May 5
- 1 min
DEBRA International attends the 2023 EWMA Conference
DEBRA International attends the 2023 EWMA Conference
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DEBRA International
- May 4
- 2 min
ERN Skin meeting held in Paris attended by DEBRA representatives from Ireland, Croatia, and Belgium
ERN Skin meeting held in Paris attended by DEBRA representatives from Ireland, Croatia, and Belgium
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DEBRA International
- May 3
- 1 min
DEBRA Chile holds 2nd Research Day for EB patients and families
DEBRA Chile holds 2nd Research Day for EB patients and families.
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DEBRA International
- Mar 23
- 1 min
DEBRA Croatia celebrates Rare Disease Day
DEBRA Croatia celebrated Rare Disease Day with a radio & television feature, Zoom lectures, & took part in an event by Rare Disease Bahrain.
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DEBRA International
- Mar 15
- 1 min
EURORDIS Black Pearl Awards 2023: United for Ukrainians Living with a Rare Disease
Orphan Diseases of Ukraine received the EURORDIS Black Pearl Award: United for Ukrainians Living with a Rare Disease.
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DEBRA International
- Mar 14
- 1 min
DEBRA Colombia attends the 33rd National Congress of Dermatology
DEBRA Colombia was invited to attend the trade show with a stand to continue raising awareness of EB and care routes in Colombia.
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DEBRA International
- Mar 13
- 1 min
Yasmin El Samra Foundation-DEBRA Egypt 'draws' interest in their annual competition
Every year, the Yasmin El Samra Foundation-DEBRA Egypt in cooperation with El Sawi Wheel Center in Cairo has held a drawing competition.
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DEBRA International
- Mar 8
- 1 min
Celebration of the 15th World Day of Rare Diseases in Colombia
On 26th February, the 15th World Day of Rare Diseases was commemorated in the city of Bogotá, Colombia.
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DEBRA International
- Mar 7
- 1 min
DEBRAs International and Egypt attend the MENA Organisation for Rare Diseases 2023 meeting in Dubai
DEBRAs International and Egypt attend the MENA Organisation for Rare Diseases 2023 meeting in Dubai
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DEBRA International
- Mar 1
- 1 min
First health workshop "Salud sin Fronteras" ("Health without Borders") held in Mexico
The free workshop was held over two days and aimed at healthcare professionals, the EB Community, patients, and families.
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DEBRA International
- Feb 21
- 1 min
Congratulations to Amryt Pharma - recipients of a EURORDIS Black Pearl Award!
We are delighted to share that Amryt Pharma received the EURORDIS company award for patient engagement at the Black Pearl Awards
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DEBRA International
- Jan 30
- 1 min
DEBRA Mexico's 1st EB Health Workshop
DEBRA Mexico's 1st EB Health Workshop. This workshop reflects the commitment of the global EB community to work together to promote health,
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DEBRA International
- Jan 20
- 1 min
DEBRA UK raises a phenomenal £140,000
DEBRA UK raises a phenomenal £140,000 at its annual Fight Night event!
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DEBRA International
- Jan 10
- 2 min
DEBRA Indonesia's theme for EB Awareness Week 2022
DEBRA Indonesia celebrates EB Awareness Week 2022 : get to know EB, Butterfly Children, and the EB Community in Indonesia
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