DEBRA Colombia's 29th Patient Gathering Event
The DEBRA Colombia Foundation held a note-worthy Patient Gathering Event in Bogota from May 5th to 7th for patients with EB
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NEWS
DEBRA Spain's work in funding research, international collaboration, and EB healthcare
DEBRA Spain are delighted to announce they will be dedicating €100,000 to a research project to develop a topical gel to treat RDEB wounds.
World Patient Alliance (WPA) Asia Pacific Regional Meeting 2023
Registration is now open for the WPA Asia Pacific Regional Meeting being held from 4th to 5th November 2023 in Dubai, UAE.
DEBRA International and GlobalSkin Symposium
The event gave clinical, research, and industry updates on EB, successful collaborations with DEBRA, and building impactful patient groups.
DEBRA France hosts its annual meeting of families in Paris
On April 1st, DEBRA France hosted its annual meeting in Paris. 30 families came together for the first time since the COVID-19 pandemic.
Celebrating two years of support in Indonesia: a recap of DEBRA Indonesia's events
The group has held several online and in-person events to cater for its EB patient and healthcare communities in the archipelagic country.
Charity run funds raised for DEBRA Germany
DEBRA Germany was one of four charitable causes that received funds raised from a charity run held on June 17th by the Lions Club Bidenkopf.
Funds raised for DEBRA Colombia through the HEELP Program
Heel Colombia has set forward a plan to rewrite the future with the purpose of transforming lives through different projects.
Prizes awarded to DEBRA representatives at GlobalSkin Conference 2023 ELEVATE
Two DEBRA reps were recipients of the Patient Leader Awards honoring leadership of GlobalSkin members at local, regional, and global levels.
DEBRA International attends GlobalSkin Conference 2023 ELEVATE
It proved a wonderful opportunity for various DEBRA/EB delegates to connect, strategise, and discuss priorities for their communities.
DEBRA Germany hosts EB families weekend
DEBRA Germany had a wonderful weekend with a group of EB families in Schmallenberg/ Sauerland.
EB Clinet Online Seminar: Nutritional Needs & Anemia in Adults with EB
The next EB Clinet Online Seminar is dedicated to the topic of 'Nutritional Needs and Anemia in Adults with EB'
DEBRA International attends the 2023 EWMA Conference
DEBRA International attends the 2023 EWMA Conference
ERN Skin meeting held in Paris attended by DEBRA representatives from Ireland, Croatia, and Belgium
ERN Skin meeting held in Paris attended by DEBRA representatives from Ireland, Croatia, and Belgium
DEBRA Chile holds 2nd Research Day for EB patients and families
DEBRA Chile holds 2nd Research Day for EB patients and families.
DEBRA Croatia celebrates Rare Disease Day
DEBRA Croatia celebrated Rare Disease Day with a radio & television feature, Zoom lectures, & took part in an event by Rare Disease Bahrain.
EURORDIS Black Pearl Awards 2023: United for Ukrainians Living with a Rare Disease
Orphan Diseases of Ukraine received the EURORDIS Black Pearl Award: United for Ukrainians Living with a Rare Disease.
DEBRA Colombia attends the 33rd National Congress of Dermatology
DEBRA Colombia was invited to attend the trade show with a stand to continue raising awareness of EB and care routes in Colombia.
Yasmin El Samra Foundation-DEBRA Egypt 'draws' interest in their annual competition
Every year, the Yasmin El Samra Foundation-DEBRA Egypt in cooperation with El Sawi Wheel Center in Cairo has held a drawing competition.
Celebration of the 15th World Day of Rare Diseases in Colombia
On 26th February, the 15th World Day of Rare Diseases was commemorated in the city of Bogotá, Colombia.
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