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NEWS


Hope and Healing: wellbeing and mental health support for families in Romania
Mini DEBRA Romania launched a new initiative offering tailored psychotherapy to improve the mental health and wellbeing of individuals and families with EB.
Jun 5


EB day at Dynamo Academy – a special gathering in Italy
Debra Italia’s EB Day at Dynamo Academy brought the EB community together for two days of connection, learning, and support in Tuscany.
May 22


DEBRA France celebrates 40 year anniversary
DEBRA France marked 40 years with families, workshops, awards, and a zoo visit, celebrating decades of support and community in the fight against EB.
May 22


Women of Egypt honor Hanaa El Sadat with Women of Impact Award
Women of Egypt recognized DEBRA Egypt founder Hanaa El Sadat with the Women of Impact Award for her life-changing work supporting children with the rare skin condition EB.
May 22


DEBRA International at the 15th World Congress of Pediatric Dermatology in Buenos Aires
DEBRA International joined the 15th WCPD in Buenos Aires to raise EB awareness, share resources, and connect with global dermatology professionals and partners.
May 21


DEBRA International attends the 2025 EWMA Conference in Barcelona
DEBRA International, represented by DEBRA Spain, raised EB awareness and fostered global partnerships at EWMA 2025 in Barcelona through talks and collaboration.
Apr 15


A morning celebrating Ramadan with Inner Wheel Clubs
The Yasmin El Samra Foundation - DEBRA Egypt share a letter of thanks and appreciation for the Ramadan celebration, now in its 27th year
Mar 31


DEBRA Jordan's Educational Day for Patients with EB on the Importance of Oral & Dental Healthcare
An Educational Day was organised for patients with EB and some Healthcare Specialists to highlight the importance of oral health in Jordan.
Feb 27


A Butterfly Summer with DEBRA Polska
Butterfly Summer 2024 was a week-long rehabilitation and educational retreat for those affected EB in Poland and Ukraine.
Feb 27


DIYC attend fifth DEBRA Brazil Congress
The DEBRA International Youth Council recall their visit to the fifth DEBRA Brazil Congress.
Feb 12


DIYC at the DEBRA Care Conference in Atlanta
An update on the DEBRA International Youth Council (DIYC) attendance at the DEBRA Care Conference.
Sep 25, 2024


The European Society for Dermatological Research (ESDR) Review
ESDR was held in Lisbon at the beginning of September. DEBRA Spain represented DEBRA International and held a talk about EB.
Sep 25, 2024


DEBRA International attends the 2024 EWMA Conference
DEBRA International held two sessions and a booth at the 2024 EWMA in London.
Jul 25, 2024


DEBRA Croatia marks Rare Disease Day 2024
DEBRA Croatia marks Rare Disease Day with three new workshops for policy makers and students.
Mar 25, 2024


DEBRA groups attend ERN Skin's Patient Education Program and Scientific Meeting
ERN Skin held a Patient Education Program and Scientific Meeting for its members. 80 participants enrolled in the two day event.
Feb 28, 2024


Debra Brasil 2023 Congress
The 4th Debra Brasil Congress held in Belo Horizonte marked a significant milestone in the awareness and research of Epidermolysis Bullosa.
Feb 28, 2024


DEBRA International celebrates EURORDIS 2024 Members Award win at the Black Pearl Awards
DEBRA International wins the EURORDIS 2024 Members Award at the Black Pearl Awards
Feb 21, 2024


DEBRA Colombia's 29th Patient Gathering Event
The DEBRA Colombia Foundation held a note-worthy Patient Gathering Event in Bogota from May 5th to 7th for patients with EB
Aug 23, 2023


DEBRA Spain's work in funding research, international collaboration, and EB healthcare
DEBRA Spain are delighted to announce they will be dedicating €100,000 to a research project to develop a topical gel to treat RDEB wounds.
Aug 22, 2023


World Patient Alliance (WPA) Asia Pacific Regional Meeting 2023
Registration is now open for the WPA Asia Pacific Regional Meeting being held from 4th to 5th November 2023 in Dubai, UAE.
Aug 16, 2023
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