NEWS

DEBRA Egypt attended No to Violence Against Women campaign, highlighting the importance of protecting and supporting women, especially girls and women with disabilities and those living with chronic and rare diseases such as Epidermolysis Bullosa (EB).

DEBRA Egypt organised an art workshop on caricature drawing as part of its ongoing activities to support Epidermolysis Bullosa (EB) patients psychologically and socially, and to help develop their skills.

DEBRA Spain held its first ever EB Nurses Conference, bringing together more than 80 healthcare professionals from across Spain.

DEBRA Slovenia marked an important milestone of 20 years of existence with a regional symposium.

Mini DEBRA Romania launched a new initiative offering tailored psychotherapy to improve the mental health and wellbeing of individuals and families with EB.

Debra Italia’s EB Day at Dynamo Academy brought the EB community together for two days of connection, learning, and support in Tuscany.

DEBRA France marked 40 years with families, workshops, awards, and a zoo visit, celebrating decades of support and community in the fight against EB.

Women of Egypt recognized DEBRA Egypt founder Hanaa El Sadat with the Women of Impact Award for her life-changing work supporting children with the rare skin condition EB.

DEBRA International joined the 15th WCPD in Buenos Aires to raise EB awareness, share resources, and connect with global dermatology professionals and partners.

DEBRA International, represented by DEBRA Spain, raised EB awareness and fostered global partnerships at EWMA 2025 in Barcelona through talks and collaboration.

The Yasmin El Samra Foundation - DEBRA Egypt share a letter of thanks and appreciation for the Ramadan celebration, now in its 27th year

An Educational Day was organised for patients with EB and some Healthcare Specialists to highlight the importance of oral health in Jordan.

Butterfly Summer 2024 was a week-long rehabilitation and educational retreat for those affected EB in Poland and Ukraine.

The DEBRA International Youth Council recall their visit to the fifth DEBRA Brazil Congress.

An update on the DEBRA International Youth Council (DIYC) attendance at the DEBRA Care Conference.

ESDR was held in Lisbon at the beginning of September. DEBRA Spain represented DEBRA International and held a talk about EB.

DEBRA International held two sessions and a booth at the 2024 EWMA in London.

DEBRA Croatia marks Rare Disease Day with three new workshops for policy makers and students.

ERN Skin held a Patient Education Program and Scientific Meeting for its members. 80 participants enrolled in the two day event.

The 4th Debra Brasil Congress held in Belo Horizonte marked a significant milestone in the awareness and research of Epidermolysis Bullosa.