In memoriam: Lisa Brains
It is with a heavy heart that we share the news that Lisa Brains, born with recessive dystrophic EB from Melbourne, Australia passed away
In memoriam: Lisa Brains
Maria Korosta's letter to us all
In memoriam: Catina Bernardis
DEBRA Germany introduces a new video on EB wound care
Remembering Prof Jouni Uitto
Sesión virtual para pacientes y familias dedicada al proyecto sobre EB de Rare Commons
Take part in an international research study on burden and resources in EB - online survey
Únete a Rare Commons para compartir tus experiencias y ayudar a mejorar el conocimiento de la EB
People with EB in Brazil have the opportunity to access genetic sequencing tests free of charge
We welcome DEBRA Belarus as one of our three new member groups
DEBRA Bosnia and Herzegovina launches picture book, Butterfly Boy
We welcome the Yasmin El Samra Foundation - DEBRA Egypt as one of our three new member groups