DEBRA groups hold COSEB workshop: working towards harmonization of outcomes in EB
The COSEB workshop was held by the COSEB Steering committee and DEBRA research managers of Austria, France, Ireland, Spain, and the UK.
DEBRA groups hold COSEB workshop: working towards harmonization of outcomes in EB
NEW! Neonatal Care in EB: a Clinical Practice Guideline now published
Last call to get patients involved in the GRIDD study
Chiesi Global Rare Diseases receives FDA approval for FILSUVEZ® topical gel for the treatment of EB
DEBRA France holds 4th annual EB professionals meeting in Paris
New international research projects from DEBRA Austria and EB Resnet
Building smiles and empowering Butterfly Children- research and webinar on oral health and QoL
DEBRA Spain's work in funding research, international collaboration, and EB healthcare
Celebrating two years of support in Indonesia: a recap of DEBRA Indonesia's events