NEWS

The COSEB workshop was held by the COSEB Steering committee and DEBRA research managers of Austria, France, Ireland, Spain, and the UK.

It highlights management priorities in neonatal EB care and provide clinicians access to recommended treatment and preventative care options

The online survey takes 10-20 minutes to complete and is open only until December 31, 2023.

FILSUVEZ topical gel is indicated for the treatment of partial thickness wounds in patients 6 months and older with Junctional and...

The DEBRA France Association organized its 4th annual meeting of epidermolysis bullosa professionals at the Necker Hospital in Paris.

Contracts for two new research projects have been successfully issued by EB Resnet 2022.

DEBRA Indonesia hosted a free webinar to increase awareness and knowledge of oral and dental health for EB patients

DEBRA Spain are delighted to announce they will be dedicating €100,000 to a research project to develop a topical gel to treat RDEB wounds.

The group has held several online and in-person events to cater for its EB patient and healthcare communities in the archipelagic country.

The nurses were educated on EB and how to take care of babies' wounds with the resources available to them in their respective centres.

From appealing for greater healthcare professional presence and attending the paediatric palliative care conference to 31 family visits.

DEBRA UK completes EB patient insight study to better understand how EB impacts a patient's life and the type of care they receive.

The next EB Clinet Online Seminar is dedicated to the topic of 'Nutritional Needs and Anemia in Adults with EB'

DEBRA International attends the 2023 EWMA Conference

ERN Skin meeting held in Paris attended by DEBRA representatives from Ireland, Croatia, and Belgium

An EB Expert Panel was launched by DEBRA Ireland to help shape their support and research priorities.

It is with a heavy heart that we share the news that Lisa Brains, born with recessive dystrophic EB from Melbourne, Australia passed away

In memoriam: Catina Bernardis

DEBRA Mexico's 1st EB Health Workshop. This workshop reflects the commitment of the global EB community to work together to promote health,

DEBRA Germany introduces a new video on EB wound care.