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NEWS


May 27, 2023
DEBRA Egypt holds arts and crafts lessons for girls with EB that helps raise funds for those with EB
With the help of volunteers, the Foundation has started the arts and crafts lessons of candle making with the girls for the past two months.


May 24, 2023
DEBRA Italia and Fondazione Reb celebrate charity concert 'MUSIC AGAINST DIFFERENCES'
DEBRA Italia and Fondazione Reb celebrate charity concert 'MUSIC AGAINST DIFFERENCES'

May 18, 2023
DEBRA UK completes its largest ever EB patient insight study
DEBRA UK completes EB patient insight study to better understand how EB impacts a patient's life and the type of care they receive.


May 4, 2023
DEBRA International attends the 2023 EWMA Conference
DEBRA International attends the 2023 EWMA Conference


Mar 23, 2023
DEBRA Croatia celebrates Rare Disease Day
DEBRA Croatia celebrated Rare Disease Day with a radio & television feature, Zoom lectures, & took part in an event by Rare Disease Bahrain.


Mar 15, 2023
EURORDIS Black Pearl Awards 2023: United for Ukrainians Living with a Rare Disease
Orphan Diseases of Ukraine received the EURORDIS Black Pearl Award: United for Ukrainians Living with a Rare Disease.


Mar 14, 2023
DEBRA Colombia attends the 33rd National Congress of Dermatology
DEBRA Colombia was invited to attend the trade show with a stand to continue raising awareness of EB and care routes in Colombia.


Mar 13, 2023
Yasmin El Samra Foundation-DEBRA Egypt 'draws' interest in their annual competition
Every year, the Yasmin El Samra Foundation-DEBRA Egypt in cooperation with El Sawi Wheel Center in Cairo has held a drawing competition.


Mar 8, 2023
Celebration of the 15th World Day of Rare Diseases in Colombia
On 26th February, the 15th World Day of Rare Diseases was commemorated in the city of Bogotá, Colombia.


Mar 7, 2023
DEBRAs International and Egypt attend the MENA Organisation for Rare Diseases 2023 meeting in Dubai
DEBRAs International and Egypt attend the MENA Organisation for Rare Diseases 2023 meeting in Dubai


Mar 1, 2023
First health workshop "Salud sin Fronteras" ("Health without Borders") held in Mexico
The free workshop was held over two days and aimed at healthcare professionals, the EB Community, patients, and families.


Feb 28, 2023
Nada Ashraf from Egypt shares her story this Rare Disease Day
Nada Ashraf from Egypt shares her story this Rare Disease Day

Feb 28, 2023
Your members' chance to participate in “The story of my skin” Art Contest
The Art Contest called “The story of my skin” started on 28th February during International Rare Disease Day and will finish on 30th May.


Feb 24, 2023
DEBRA UK commissions EB patient insight study
DEBRA UK has commissioned a specialist medical research agency to conduct a detailed EB patient insight study on their behalf.


Feb 22, 2023
EURORDIS Photo Awards 2023
'Smile to life, whatever the obstacles'

Feb 21, 2023
Congratulations to Amryt Pharma - recipients of a EURORDIS Black Pearl Award!
We are delighted to share that Amryt Pharma received the EURORDIS company award for patient engagement at the Black Pearl Awards


Feb 10, 2023
Maria Korosta's letter to us all
Maria Korosta, a paramedic living in Korost, a village in Rivne Pblast, Ukraine with her 2 boys Maksym (13) and Mykola (8)


Feb 8, 2023
New shipment of humanitarian aid arrives in Ukraine
On 8th February 2023, DEBRA Ukraine received 200 kg worth of humanitarian aid for 60 EB patients living in the country.


Jan 27, 2023
DEBRA Egypt celebrates EB Awareness Week 2022 on the Nile with EB patients and their families
DEBRA Egypt celebrates EB Awareness Week on the Nile with EB patients and their families.


Jan 20, 2023
DEBRA UK raises a phenomenal £140,000
DEBRA UK raises a phenomenal £140,000 at its annual Fight Night event!
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