DEBRA Egypt holds arts and crafts lessons for girls with EB that helps raise funds for those with EB
DEBRA Egypt holds arts and crafts lessons for girls with EB that helps raise funds for those with EB
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DEBRA International
- May 28
- 1 min
DEBRA Australia's 'Butterfly Breaks'
DEBRA Australia is thrilled to offer the 'Butterfly Breaks' program, providing much-needed respite for individuals, couples, and families.
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DEBRA International
- May 25
- 1 min
DEBRA Italia and Fondazione Reb celebrate charity concert 'MUSIC AGAINST DIFFERENCES'
DEBRA Italia and Fondazione Reb celebrate charity concert 'MUSIC AGAINST DIFFERENCES'
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DEBRA International
- May 24
- 1 min
DEBRA Germany hosts EB families weekend
DEBRA Germany had a wonderful weekend with a group of EB families in Schmallenberg/ Sauerland.
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DEBRA International
- May 24
- 2 min
US FDA gives its first approval for new treatment for dystrophic EB
Krystal Biotech has received FDA approval for the first-ever redosable gene therapy, VYJUVEKâ„¢.
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DEBRA International
- May 19
- 1 min
DEBRA UK completes its largest ever EB patient insight study
DEBRA UK completes EB patient insight study to better understand how EB impacts a patient's life and the type of care they receive.
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DEBRA International
- May 17
- 1 min
EB Clinet Online Seminar: Nutritional Needs & Anemia in Adults with EB
The next EB Clinet Online Seminar is dedicated to the topic of 'Nutritional Needs and Anemia in Adults with EB'
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DEBRA International
- May 4
- 2 min
ERN Skin meeting held in Paris attended by DEBRA representatives from Ireland, Croatia, and Belgium
ERN Skin meeting held in Paris attended by DEBRA representatives from Ireland, Croatia, and Belgium
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DEBRA International
- May 3
- 1 min
DEBRA Chile holds 2nd Research Day for EB patients and families
DEBRA Chile holds 2nd Research Day for EB patients and families.
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DEBRA International
- May 1
- 1 min
New clinical trials online tool goes live
EB Research Network has created a new online tool to make tracking of clinical trials easier
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DEBRA International
- Mar 23
- 1 min
DEBRA Croatia celebrates Rare Disease Day
DEBRA Croatia celebrated Rare Disease Day with a radio & television feature, Zoom lectures, & took part in an event by Rare Disease Bahrain.
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DEBRA International
- Mar 15
- 1 min
EURORDIS Black Pearl Awards 2023: United for Ukrainians Living with a Rare Disease
Orphan Diseases of Ukraine received the EURORDIS Black Pearl Award: United for Ukrainians Living with a Rare Disease.
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DEBRA International
- Mar 13
- 1 min
Yasmin El Samra Foundation-DEBRA Egypt 'draws' interest in their annual competition
Every year, the Yasmin El Samra Foundation-DEBRA Egypt in cooperation with El Sawi Wheel Center in Cairo has held a drawing competition.
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DEBRA International
- Mar 10
- 1 min
DEBRA Ireland launches an EB Expert Panel to help shape its support and research priorities
An EB Expert Panel was launched by DEBRA Ireland to help shape their support and research priorities.
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DEBRA International
- Mar 7
- 1 min
DEBRAs International and Egypt attend the MENA Organisation for Rare Diseases 2023 meeting in Dubai
DEBRAs International and Egypt attend the MENA Organisation for Rare Diseases 2023 meeting in Dubai
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DEBRA International
- Mar 1
- 1 min
First health workshop "Salud sin Fronteras" ("Health without Borders") held in Mexico
The free workshop was held over two days and aimed at healthcare professionals, the EB Community, patients, and families.
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