DEBRA InternationalOct 7, 20211 minNEW! Physiotherapy for EB: clinical practice guidelinesWe are delighted to announce the publication of the "Physiotherapy for epidermolysis bullosa: clinical practice guidelines" in the...
DEBRA InternationalMay 20, 20211 minSesión virtual para pacientes y familias dedicada al proyecto sobre EB de Rare CommonsSesión virtual para pacientes y familias dedicada al proyecto sobre EB de Rare Commons
DEBRA InternationalMay 7, 20212 minTake part in an international research study on burden and resources in EB - online surveyTake the survey in English: https://survey.sfu.ac.at/EB2021/?q=E_Qnr Take the online survey in German: https://survey.sfu.ac.at/EB2021/?q...
DEBRA InternationalApr 22, 20212 minÚnete a Rare Commons para compartir tus experiencias y ayudar a mejorar el conocimiento de la EB Rare Commons es un proyecto de investigación del Hospital Sant Joan de Déu de Barcelona que se centra en el estudio biomédico de las...
DEBRA InternationalMar 13, 20212 minPeople with EB in Brazil have the opportunity to access genetic sequencing tests free of charge With 28th February 2021 marking Rare Disease Day, DEBRA Brasil and Illumina have joined forces to launch a pioneering and high impact...
DEBRA InternationalMar 5, 20212 minWe welcome DEBRA Belarus as one of our three new member groupsDEBRA International is delighted to welcome DEBRA Belarus as one of its newest member groups. The Republican Public Association for Aid...
DEBRA InternationalFeb 1, 20212 minDEBRA Bosnia and Herzegovina launches picture book, Butterfly BoyIn 2019, DEBRA International was delighted to be able to support its member group, DEBRA BiH with a grant for their project to create and...
DEBRA InternationalFeb 1, 20213 minDEBRA International supports DEBRA Pakistan's first ever EB Awareness Week eventsDEBRA International, through its EB Without Borders programme, was delighted to support the DEBRA Pakistan team in holding their first EB...
DEBRA InternationalFeb 1, 20212 minWe welcome the Yasmin El Samra Foundation - DEBRA Egypt as one of our three new member groupsDEBRA International is delighted to welcome the Yasmin El Samra Foundation - DEBRA Egypt as one of its newest member groups. My name is...