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DEBRA International
- Jan 23
- 1 min
DEBRA Germany introduces a new video on EB wound care
DEBRA Germany introduces a new video on EB wound care.
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DEBRA International
- Jan 10
- 2 min
DEBRA Indonesia's theme for EB Awareness Week 2022
DEBRA Indonesia celebrates EB Awareness Week 2022 : get to know EB, Butterfly Children, and the EB Community in Indonesia
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DEBRA International
- Dec 21, 2022
- 1 min
We welcome DEBRA South Africa as one of our newest member groups
DEBRA International is delighted to welcome DEBRA South Africa as one of its newest member groups. DEBRA South Africa started in 2020...
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DEBRA International
- Dec 21, 2022
- 1 min
Taking DEBRA to new heights
During EB Awareness Week 2022, DEBRA International followed the endeavours of Dr Niraj Parajuli, a dermatologist from the National...
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DEBRA International
- Dec 21, 2022
- 2 min
First-ever EB meeting held in Bangkok, Thailand
Ritu Jain, DEBRA International President travelled to Thailand to take part in the first-ever EB meeting, which was held with the support...
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DEBRA International
- Oct 7, 2021
- 1 min
NEW! Physiotherapy for EB: clinical practice guidelines
We are delighted to announce the publication of the "Physiotherapy for epidermolysis bullosa: clinical practice guidelines" in the...
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DEBRA International
- May 20, 2021
- 1 min
Sesión virtual para pacientes y familias dedicada al proyecto sobre EB de Rare Commons
Sesión virtual para pacientes y familias dedicada al proyecto sobre EB de Rare Commons
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DEBRA International
- May 7, 2021
- 2 min
Take part in an international research study on burden and resources in EB - online survey
Take the survey in English: https://survey.sfu.ac.at/EB2021/?q=E_Qnr Take the online survey in German: https://survey.sfu.ac.at/EB2021/?q...
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DEBRA International
- Apr 22, 2021
- 2 min
Únete a Rare Commons para compartir tus experiencias y ayudar a mejorar el conocimiento de la EB
Rare Commons es un proyecto de investigación del Hospital Sant Joan de Déu de Barcelona que se centra en el estudio biomédico de las...
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DEBRA International
- Mar 13, 2021
- 2 min
People with EB in Brazil have the opportunity to access genetic sequencing tests free of charge
With 28th February 2021 marking Rare Disease Day, DEBRA Brasil and Illumina have joined forces to launch a pioneering and high impact...
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DEBRA International
- Mar 5, 2021
- 2 min
We welcome DEBRA Belarus as one of our three new member groups
DEBRA International is delighted to welcome DEBRA Belarus as one of its newest member groups. The Republican Public Association for Aid...
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DEBRA International
- Feb 1, 2021
- 2 min
DEBRA Bosnia and Herzegovina launches picture book, Butterfly Boy
In 2019, DEBRA International was delighted to be able to support its member group, DEBRA BiH with a grant for their project to create and...
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DEBRA International
- Feb 1, 2021
- 3 min
DEBRA International supports DEBRA Pakistan's first ever EB Awareness Week events
DEBRA International, through its EB Without Borders programme, was delighted to support the DEBRA Pakistan team in holding their first EB...
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DEBRA International
- Feb 1, 2021
- 2 min
We welcome the Yasmin El Samra Foundation - DEBRA Egypt as one of our three new member groups
DEBRA International is delighted to welcome the Yasmin El Samra Foundation - DEBRA Egypt as one of its newest member groups. My name is...
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