NEWS

Sesión virtual para pacientes y familias dedicada al proyecto sobre EB de Rare Commons

Take part in an international research study on burden and resources in EB - online survey

Take the survey in English: https://survey.sfu.ac.at/EB2021/?q=E_Qnr Take the online survey in German: https://survey.sfu.ac.at/EB2021/?q...

Únete a Rare Commons para compartir tus experiencias y ayudar a mejorar el conocimiento de la EB

Rare Commons es un proyecto de investigación del Hospital Sant Joan de Déu de Barcelona que se centra en el estudio biomédico de las...

People with EB in Brazil have the opportunity to access genetic sequencing tests free of charge

With 28th February 2021 marking Rare Disease Day, DEBRA Brasil and Illumina have joined forces to launch a pioneering and high impact...

We welcome DEBRA Belarus as one of our three new member groups

DEBRA International is delighted to welcome DEBRA Belarus as one of its newest member groups. The Republican Public Association for Aid...

DEBRA Bosnia and Herzegovina launches picture book, Butterfly Boy

In 2019, DEBRA International was delighted to be able to support its member group, DEBRA BiH with a grant for their project to create and...

DEBRA International supports DEBRA Pakistan's first ever EB Awareness Week events

DEBRA International, through its EB Without Borders programme, was delighted to support the DEBRA Pakistan team in holding their first EB...

We welcome the Yasmin El Samra Foundation - DEBRA Egypt as one of our three new member groups

DEBRA International is delighted to welcome the Yasmin El Samra Foundation - DEBRA Egypt as one of its newest member groups. My name is...