DEBRA Egypt holds arts and crafts lessons for girls with EB that helps raise funds for those with EB
DEBRA Egypt holds arts and crafts lessons for girls with EB that helps raise funds for those with EB
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DEBRA International
- May 28
- 1 min
DEBRA Australia's 'Butterfly Breaks'
DEBRA Australia is thrilled to offer the 'Butterfly Breaks' program, providing much-needed respite for individuals, couples, and families.
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DEBRA International
- May 25
- 1 min
DEBRA Italia and Fondazione Reb celebrate charity concert 'MUSIC AGAINST DIFFERENCES'
DEBRA Italia and Fondazione Reb celebrate charity concert 'MUSIC AGAINST DIFFERENCES'
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DEBRA International
- May 24
- 1 min
DEBRA Germany hosts EB families weekend
DEBRA Germany had a wonderful weekend with a group of EB families in Schmallenberg/ Sauerland.
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DEBRA International
- May 19
- 1 min
DEBRA UK completes its largest ever EB patient insight study
DEBRA UK completes EB patient insight study to better understand how EB impacts a patient's life and the type of care they receive.
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DEBRA International
- May 4
- 2 min
ERN Skin meeting held in Paris attended by DEBRA representatives from Ireland, Croatia, and Belgium
ERN Skin meeting held in Paris attended by DEBRA representatives from Ireland, Croatia, and Belgium
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DEBRA International
- May 3
- 1 min
DEBRA Chile holds 2nd Research Day for EB patients and families
DEBRA Chile holds 2nd Research Day for EB patients and families.
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DEBRA International
- Mar 23
- 1 min
DEBRA Croatia celebrates Rare Disease Day
DEBRA Croatia celebrated Rare Disease Day with a radio & television feature, Zoom lectures, & took part in an event by Rare Disease Bahrain.
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DEBRA International
- Mar 14
- 1 min
DEBRA Colombia attends the 33rd National Congress of Dermatology
DEBRA Colombia was invited to attend the trade show with a stand to continue raising awareness of EB and care routes in Colombia.
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DEBRA International
- Mar 13
- 1 min
Yasmin El Samra Foundation-DEBRA Egypt 'draws' interest in their annual competition
Every year, the Yasmin El Samra Foundation-DEBRA Egypt in cooperation with El Sawi Wheel Center in Cairo has held a drawing competition.
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DEBRA International
- Mar 10
- 1 min
DEBRA Ireland launches an EB Expert Panel to help shape its support and research priorities
An EB Expert Panel was launched by DEBRA Ireland to help shape their support and research priorities.
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DEBRA International
- Mar 8
- 1 min
Celebration of the 15th World Day of Rare Diseases in Colombia
On 26th February, the 15th World Day of Rare Diseases was commemorated in the city of Bogotá, Colombia.
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DEBRA International
- Mar 7
- 1 min
DEBRAs International and Egypt attend the MENA Organisation for Rare Diseases 2023 meeting in Dubai
DEBRAs International and Egypt attend the MENA Organisation for Rare Diseases 2023 meeting in Dubai
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DEBRA International
- Mar 1
- 1 min
First health workshop "Salud sin Fronteras" ("Health without Borders") held in Mexico
The free workshop was held over two days and aimed at healthcare professionals, the EB Community, patients, and families.
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DEBRA International
- Feb 28
- 3 min
Nada Ashraf from Egypt shares her story this Rare Disease Day
Nada Ashraf from Egypt shares her story this Rare Disease Day
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DEBRA International
- Feb 24
- 1 min
DEBRA UK commissions EB patient insight study
DEBRA UK has commissioned a specialist medical research agency to conduct a detailed EB patient insight study on their behalf.
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