DEBRA Mexico's 1st EB Health Workshop
DEBRA Mexico's 1st EB Health Workshop. This workshop reflects the commitment of the global EB community to work together to promote health,
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DEBRA International
- Jan 27
- 2 min
DEBRA Egypt celebrates EB Awareness Week 2022 on the Nile with EB patients and their families
DEBRA Egypt celebrates EB Awareness Week on the Nile with EB patients and their families.
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DEBRA International
- Jan 25
- 2 min
Ukraine - a mother's note of hardship and hope
Ukraine - a mother's note of hardship and hope
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DEBRA International
- Jan 23
- 1 min
DEBRA Germany introduces a new video on EB wound care
DEBRA Germany introduces a new video on EB wound care.
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DEBRA International
- Jan 20
- 1 min
DEBRA UK raises a phenomenal £140,000
DEBRA UK raises a phenomenal £140,000 at its annual Fight Night event!
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DEBRA International
- Jan 17
- 1 min
EB Awareness Week 2022 in Croatia
EB Awareness Week 2022 in Croatia was full of various activities.
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DEBRA International
- Jan 10
- 2 min
DEBRA Indonesia's theme for EB Awareness Week 2022
DEBRA Indonesia celebrates EB Awareness Week 2022 : get to know EB, Butterfly Children, and the EB Community in Indonesia
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DEBRA International
- Dec 21, 2022
- 1 min
We welcome DEBRA South Africa as one of our newest member groups
DEBRA International is delighted to welcome DEBRA South Africa as one of its newest member groups. DEBRA South Africa started in 2020...
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DEBRA International
- Dec 21, 2022
- 1 min
Taking DEBRA to new heights
During EB Awareness Week 2022, DEBRA International followed the endeavours of Dr Niraj Parajuli, a dermatologist from the National...
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DEBRA International
- Oct 19, 2022
- 1 min
Epidemiology, pathological, and genetic characteristics of EB in New Zealand
Grant round: May 2018 Grant type: Project grant Grant recipient: DEBRA New Zealand Grant amount awarded: € 2,500.00 This grant supported...
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DEBRA International
- Oct 19, 2022
- 1 min
DEBRA Colombia activities in July and August 2022
July and August were busy months for DEBRA Colombia as they took part in several fundraising, and EB awareness raising and educational...
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DEBRA International
- Oct 19, 2022
- 1 min
1st Ibero-American Meeting of EB Online
In May 2022, we had the great fortune of bringing together nine Spanish-speaking countries together for the 1st Ibero-American Meeting of...
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DEBRA International
- Oct 19, 2022
- 1 min
Primer Encuentro Iberoamericano de EB online
El pasado mes de mayo tuvimos la gran fortuna de reunir a 9 países de habla hispana a través de un encuentro online. Se sumaron...
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DEBRA International
- May 20, 2021
- 1 min
Sesión virtual para pacientes y familias dedicada al proyecto sobre EB de Rare Commons
Sesión virtual para pacientes y familias dedicada al proyecto sobre EB de Rare Commons
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DEBRA International
- May 7, 2021
- 2 min
Take part in an international research study on burden and resources in EB - online survey
Take the survey in English: https://survey.sfu.ac.at/EB2021/?q=E_Qnr Take the online survey in German: https://survey.sfu.ac.at/EB2021/?q...
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DEBRA International
- Apr 22, 2021
- 2 min
Únete a Rare Commons para compartir tus experiencias y ayudar a mejorar el conocimiento de la EB
Rare Commons es un proyecto de investigación del Hospital Sant Joan de Déu de Barcelona que se centra en el estudio biomédico de las...
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DEBRA International
- Mar 13, 2021
- 2 min
People with EB in Brazil have the opportunity to access genetic sequencing tests free of charge
With 28th February 2021 marking Rare Disease Day, DEBRA Brasil and Illumina have joined forces to launch a pioneering and high impact...
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DEBRA International
- Mar 5, 2021
- 2 min
We welcome DEBRA Belarus as one of our three new member groups
DEBRA International is delighted to welcome DEBRA Belarus as one of its newest member groups. The Republican Public Association for Aid...
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DEBRA International
- Feb 1, 2021
- 2 min
DEBRA Bosnia and Herzegovina launches picture book, Butterfly Boy
In 2019, DEBRA International was delighted to be able to support its member group, DEBRA BiH with a grant for their project to create and...
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DEBRA International
- Feb 1, 2021
- 3 min
DEBRA International supports DEBRA Pakistan's first ever EB Awareness Week events
DEBRA International, through its EB Without Borders programme, was delighted to support the DEBRA Pakistan team in holding their first EB...
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