NEWS

DEBRA Colombia's 29th Patient Gathering Event

The DEBRA Colombia Foundation held a note-worthy Patient Gathering Event in Bogota from May 5th to 7th for patients with EB

Building smiles and empowering Butterfly Children- research and webinar on oral health and QoL

DEBRA Indonesia hosted a free webinar to increase awareness and knowledge of oral and dental health for EB patients

DEBRA Spain's work in funding research, international collaboration, and EB healthcare

DEBRA Spain are delighted to announce they will be dedicating €100,000 to a research project to develop a topical gel to treat RDEB wounds.

DEBRA UK announces its first approved drug repurposing clinical trial

This clinical trial will see an existing licensed treatment for psoriasis clinically tested on children and adults with severe EB simplex

LifeArc and DEBRA Austria launch £2.5m funding call for repurposing therapies for EB

This Special call will seek innovative proposals to develop therapeutics for severe unmet needs that can be brought rapidly to EB patients.

DEBRA France hosts its annual meeting of families in Paris

On April 1st, DEBRA France hosted its annual meeting in Paris. 30 families came together for the first time since the COVID-19 pandemic.

Celebrating two years of support in Indonesia: a recap of DEBRA Indonesia's events

The group has held several online and in-person events to cater for its EB patient and healthcare communities in the archipelagic country.

Charity run funds raised for DEBRA Germany

DEBRA Germany was one of four charitable causes that received funds raised from a charity run held on June 17th by the Lions Club Bidenkopf.

DEBRA South Africa takes part in Dermatology Nursing Workshop

The nurses were educated on EB and how to take care of babies' wounds with the resources available to them in their respective centres.

Funds raised for DEBRA Colombia through the HEELP Program

Heel Colombia has set forward a plan to rewrite the future with the purpose of transforming lives through different projects.

DEBRA Ireland has a new look

Debra Ireland have been working hard to refresh its look to make it more relevant, accessible and in line with what they want to achieve.

Empowering girls in Egypt

The objective of the foundation is to encourage EB patients interested in drawing and learning crafts.

Prizes awarded to DEBRA representatives at GlobalSkin Conference 2023 ELEVATE

Two DEBRA reps were recipients of the Patient Leader Awards honoring leadership of GlobalSkin members at local, regional, and global levels.

DEBRA International attends GlobalSkin Conference 2023 ELEVATE

It proved a wonderful opportunity for various DEBRA/EB delegates to connect, strategise, and discuss priorities for their communities.

Graeme Souness swimming the English Channel for DEBRA UK

Graeme set a lofty target of raising £1.1 million from the Channel swim, which has now been surpassed with well over £1.2 million raised.

Video highlights of DEBRA Ukraine's activities supporting its members during war time

The video demonstrates the sterling work by the group to support its members and EB patient community in times of extreme adversity.

DEBRA Spain works to ensure families receive the best possible level of care

From appealing for greater healthcare professional presence and attending the paediatric palliative care conference to 31 family visits.

DEBRA Egypt holds arts and crafts lessons for girls with EB that helps raise funds for those with EB

With the help of volunteers, the Foundation has started the arts and crafts lessons of candle making with the girls for the past two months.

DEBRA Australia's 'Butterfly Breaks'

DEBRA Australia is thrilled to offer the 'Butterfly Breaks' program, providing much-needed respite for individuals, couples, and families.

DEBRA Italia and Fondazione Reb celebrate charity concert 'MUSIC AGAINST DIFFERENCES'