NEWS

Aug 23, 2023

DEBRA Colombia's 29th Patient Gathering Event

The DEBRA Colombia Foundation held a note-worthy Patient Gathering Event in Bogota from May 5th to 7th for patients with EB

Aug 16, 2023

World Patient Alliance (WPA) Asia Pacific Regional Meeting 2023

Registration is now open for the WPA Asia Pacific Regional Meeting being held from 4th to 5th November 2023 in Dubai, UAE.

Aug 1, 2023

DEBRA International and GlobalSkin Symposium

The event gave clinical, research, and industry updates on EB, successful collaborations with DEBRA, and building impactful patient groups.

Jun 28, 2023

DEBRA France hosts its annual meeting of families in Paris

On April 1st, DEBRA France hosted its annual meeting in Paris. 30 families came together for the first time since the COVID-19 pandemic.

Jun 27, 2023

Celebrating two years of support in Indonesia: a recap of DEBRA Indonesia's events

The group has held several online and in-person events to cater for its EB patient and healthcare communities in the archipelagic country.

Jun 27, 2023

Charity run funds raised for DEBRA Germany

DEBRA Germany was one of four charitable causes that received funds raised from a charity run held on June 17th by the Lions Club Bidenkopf.

Jun 27, 2023

Funds raised for DEBRA Colombia through the HEELP Program

Heel Colombia has set forward a plan to rewrite the future with the purpose of transforming lives through different projects.

Jun 23, 2023

Prizes awarded to DEBRA representatives at GlobalSkin Conference 2023 ELEVATE

Two DEBRA reps were recipients of the Patient Leader Awards honoring leadership of GlobalSkin members at local, regional, and global levels.

Jun 23, 2023

DEBRA International attends GlobalSkin Conference 2023 ELEVATE

It proved a wonderful opportunity for various DEBRA/EB delegates to connect, strategise, and discuss priorities for their communities.

May 25, 2023

DEBRA Italia and Fondazione Reb celebrate charity concert 'MUSIC AGAINST DIFFERENCES'

May 24, 2023

DEBRA Germany hosts EB families weekend

DEBRA Germany had a wonderful weekend with a group of EB families in Schmallenberg/ Sauerland.

May 17, 2023

EB Clinet Online Seminar: Nutritional Needs & Anemia in Adults with EB

The next EB Clinet Online Seminar is dedicated to the topic of 'Nutritional Needs and Anemia in Adults with EB'

May 5, 2023

DEBRA International attends the 2023 EWMA Conference

May 4, 2023

ERN Skin meeting held in Paris attended by DEBRA representatives from Ireland, Croatia, and Belgium

May 3, 2023

DEBRA Chile holds 2nd Research Day for EB patients and families

DEBRA Chile holds 2nd Research Day for EB patients and families.

Mar 23, 2023

DEBRA Croatia celebrates Rare Disease Day

DEBRA Croatia celebrated Rare Disease Day with a radio & television feature, Zoom lectures, & took part in an event by Rare Disease Bahrain.

Mar 15, 2023

EURORDIS Black Pearl Awards 2023: United for Ukrainians Living with a Rare Disease

Orphan Diseases of Ukraine received the EURORDIS Black Pearl Award: United for Ukrainians Living with a Rare Disease.

Mar 14, 2023

DEBRA Colombia attends the 33rd National Congress of Dermatology

DEBRA Colombia was invited to attend the trade show with a stand to continue raising awareness of EB and care routes in Colombia.

Mar 8, 2023

Celebration of the 15th World Day of Rare Diseases in Colombia

On 26th February, the 15th World Day of Rare Diseases was commemorated in the city of Bogotá, Colombia.

Mar 7, 2023

DEBRAs International and Egypt attend the MENA Organisation for Rare Diseases 2023 meeting in Dubai