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NEWS


In memoriam: Catina Bernardis
In memoriam: Catina Bernardis
Jan 31, 2023


DEBRA Mexico's 1st EB Health Workshop
DEBRA Mexico's 1st EB Health Workshop. This workshop reflects the commitment of the global EB community to work together to promote health,
Jan 30, 2023


DEBRA Egypt celebrates EB Awareness Week 2022 on the Nile with EB patients and their families
DEBRA Egypt celebrates EB Awareness Week on the Nile with EB patients and their families.
Jan 27, 2023


Ukraine - a mother's note of hardship and hope
Ukraine - a mother's note of hardship and hope
Jan 25, 2023


DEBRA Germany introduces a new video on EB wound care
DEBRA Germany introduces a new video on EB wound care.
Jan 23, 2023


DEBRA UK raises a phenomenal £140,000
DEBRA UK raises a phenomenal £140,000 at its annual Fight Night event!
Jan 20, 2023


EB Awareness Week 2022 in Croatia
EB Awareness Week 2022 in Croatia was full of various activities.
Jan 17, 2023


DEBRA Indonesia's theme for EB Awareness Week 2022
DEBRA Indonesia celebrates EB Awareness Week 2022 : get to know EB, Butterfly Children, and the EB Community in Indonesia
Jan 10, 2023


Remembering Prof Jouni Uitto
It is with a heavy heart that we share the news that a great legend in dermatology, Dr Jouni Uitto, passed away recently.
Jan 6, 2023


We welcome DEBRA South Africa as one of our newest member groups
DEBRA International is delighted to welcome DEBRA South Africa as one of its newest member groups. DEBRA South Africa started in 2020...
Dec 21, 2022


Taking DEBRA to new heights
During EB Awareness Week 2022, DEBRA International followed the endeavours of Dr Niraj Parajuli, a dermatologist from the National...
Dec 21, 2022


First-ever EB meeting held in Bangkok, Thailand
Ritu Jain, DEBRA International President travelled to Thailand to take part in the first-ever EB meeting, which was held with the support...
Dec 21, 2022


NEW! Hand surgery and hand therapy CPG for EB now published
We are delighted to announce that the "Hand surgery and hand therapy clinical practice guideline for epidermolysis bullosa" has been...
Nov 14, 2022


Epidemiology, pathological, and genetic characteristics of EB in New Zealand
Grant round: May 2018 Grant type: Project grant Grant recipient: DEBRA New Zealand Grant amount awarded: € 2,500.00 This grant supported...
Oct 19, 2022


DEBRA Colombia activities in July and August 2022
July and August were busy months for DEBRA Colombia as they took part in several fundraising, and EB awareness raising and educational...
Oct 19, 2022


1st Ibero-American Meeting of EB Online
In May 2022, we had the great fortune of bringing together nine Spanish-speaking countries together for the 1st Ibero-American Meeting of...
Oct 19, 2022


Primer Encuentro Iberoamericano de EB online
El pasado mes de mayo tuvimos la gran fortuna de reunir a 9 países de habla hispana a través de un encuentro online. Se sumaron...
Oct 19, 2022


International EB research: selection of high-quality research proposals 2022 has started
The 2022 All Priorities Call as well as the Ad-hoc Special Call for research proposals are now closed. We would like to thank the EB...
Oct 19, 2022


DEBRA International had a successful webinar on the Pregnancy, Childbirth and Aftercare in EB.
On 23 February 2022, DEBRA International had a webinar on the Pregnancy, Childbirth and Aftercare in epidermolysis bullosa...
Apr 8, 2022


EB Awareness Month 2021 activity report!
DEBRA International was delighted to support DEBRA Indonesia team in holding the EB Awareness Month October 2021. In October 2021, EB...
Feb 21, 2022


Art Exhibition for EB children in Egypt "BUTTEFLIES CHALLENGE"
DEBRA International is delighted to announce the First Art exhibition for EB children in Egypt and worldwide in cooperation with Yasmin...
Feb 21, 2022


The UN official adoption
On the 16 December 2021, the UN General Assembly has formally adopted the UN Resolution on Addressing the Challenges of Persons Living...
Feb 8, 2022


NEW! Physiotherapy for EB: clinical practice guidelines
We are delighted to announce the publication of the "Physiotherapy for epidermolysis bullosa: clinical practice guidelines" in the...
Oct 7, 2021


Sesión virtual para pacientes y familias dedicada al proyecto sobre EB de Rare Commons
Sesión virtual para pacientes y familias dedicada al proyecto sobre EB de Rare Commons
May 20, 2021
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